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The Institute for Leadership and Management in Health (ILMH) challenges the boundaries of uncertainty and value in healthcare. ILMH links a variety of intellectual, human and technical assets to create value in health.
We invest our intellectual capital in the development of innovative financial and econometric models entirely based on outcome data to support policy decisions.
The focus of recent and ongoing research includes:
Professor Giampiero Favato
Dr Andrea Marcellusi (Lecturer in Health Economics)
Dr Riccardo Vecchiato (Associate Professor of Strategy)
Dr Emmanouil Noikokyris (Associate Professor of Finance)
Dr Cristina Oliva (PhD student)
Gianluca Fabiano (PhD student)
Dr Fatima Annan-Diab (Kingston Business School)
Professor Francesco Mennini (University of Rome "Tor Vergata", University of Rome "La Sapienza")
Professor Massimo Pinzani (UCL, London)
This privacy notice explains how the Institute for Leadership and Management in Health (ILMH) ("we", "our", "us") collects, uses and shares your personal data (information) and your rights in relation to this data. The notice relates to our processing of personal data from NHS Digital, Hospital Episodes Statistics ("you", "your").
This privacy notice answers the following questions:
ILMH is part of Kingston University ("the University"). The University is the data controller of your personal data and is subject to the General Data Protection Regulation (the "GDPR") and the UK Data Protection Act 2018. As such, the University listed on the Information Commissioner's Office (ICO) register of fee payers.
We may update this privacy notice periodically and if we do we will publish this on our website.
ILMH conducts health research. To do this, ILMH requires access to the NHS Admitted Patient Care (APS) - Hospital Episode Statistics (HES) database. The objective of this specific research study is to estimate the economic burden of human papilloma virus (HPV) in the UK.
We collect the data from two NHS Digital databases:
Data will be provided to the University by the NHS in a pseudonymised format meaning that directly-identifiable pieces of information, such as names, have been removed before the University receives it. Pseudonymised data is considered personal data and therefore falls under the protection of data protection legislation.
Data will not be used for commercial purposes, or direct marketing or provided in any form to any third party for other purposes.
What types of information do we collect about you?
A number of information fields are contained in the datasets. These data fields include personal and non-personal data such as:
The data does not include names of individuals.
How will we use your information?
The information will be analysed to estimate the economic burden of HPV in the UK. This analysis will be written up to produce a scientific article to be submitted to peer-reviewed journals for publication. No individuals will be identified in the published article.
What legal basis do we have for processing your information?
There are a number of lawful bases for processing personal data under the GDPR. These bases are also different depending on whether the data is normal personal data (for example, names and phone numbers) or special category personal data. Special category personal data is sensitive personal data such as information relating to health, religion and trade union membership.
For personal data we rely upon processing that is necessary for the performance of a task carried out in the public interest as our lawful basis (GDPR Article 6 (1) (e)). This relates to the University's mission to conduct research for education purposes.
For special category personal data we rely upon processing that is necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes as our lawful basis (GDPR Article 9 (2) (j)) and conditions relating to research under the Data Protection Act 2018 (Schedule 1, Part 1). Again, the University has an objective to facilitate education and research.
For the dissemination of the NHS data researchers rely upon the Health and Social Care Act 2012 (s261(1) and s261(2)(b)(ii)).
The raw data is provided by and shared with NHS Digital. Data will not be used for commercial purposes or direct marketing. Data will not be passed on to any third party except very limited suppliers that provide information technology services to the University. This may include, for example, cloud storage. These suppliers have contractual obligations with the University to preserve the confidentiality and security of the data.
Within the University, data will be controlled by members of the ILMH. Data requested will only be accessed by individuals within the University who have authorisation from ILMH to access the data for the specific research purpose(s) described. Researchers involved in the project are employees of the University. As substantive employees at Kingston University they will only carry out data processing for which they have been appropriately trained in data protection and confidentiality.
Information transferred overseas
Some of the personal data we process about you may be transferred to, and stored at, a destination outside the European Economic Area ("EEA"). These processes include where the personal data is processed by our staff, contractors or suppliers who are based outside the EEA or who use storage facilities outside the EEA, such as cloud storage providers.
In these circumstances, your personal data will only be transferred on one of the following bases:
The University has a data sharing agreement to use the data with NHS Digital that ends on 14 February 2021.
How do you make sure my information remains accurate?
It is important that the personal information we hold about you remains accurate. We do not amend the data we receive from NHS Digital apart from to enable our analysis, but this does not affect the accuracy of the data. Any outputs, such as publications, are therefore based on the original accurate data. The raw data is held for the duration of the data sharing agreement.
Under the GDPR and the DPA 2018, you have the following rights if it is possible for us to identify you in the data set:
If you wish to exercise your rights please contact the project team or Data Protection Officer using the contact details set out below.
If you have any queries about the research and the data being used you should, in the first instance, contact Professor Giampiero Favato, Director of the Institute of Leadership and Management in Health by email: firstname.lastname@example.org.
If you wish to request access to the personal data we hold about you please use the Subject Access Request Form available online. For any other queries about this privacy notice or how we process your personal data you can contact our Data Protection Officer by email: DPO@kingston.ac.uk or by post: Data Protection Officer, Vice Chancellor's Office, River House, 53-57 High Street, Kingston upon Thames, Surrey KT1 1LQ.
If you are not satisfied with how we are processing your personal data, you can make a complaint to the Information Commissioner.
You can find out more about your rights under data protection legislation from the Information Commissioner's Office website.